Links and Resources
- Parent to Parent of Vermont and Parent to Parent of New Hampshire: Parent to Parent is a statewide organization that aids in helping families with children with special needs find support from other parents, healthcare professionals, and the communities in which they live.
- Special Medical Services: A provider of medical and financial services to children with physical disabilities, chronic illnesses and special health care needs. They also provide information and referral to community resources, care coordination services, nutritional consultation, pediatric neuromotor and amputee clinics, support for child development clinics, nutritional and feeding/swallowing consultation, psychological and physical therapy consultation, and support for the NH Family Voices and Parent-to-Parent programs.
- NH Family Voices: Looking for information about your child's special health care needs or disability? Want to talk to another parent who's been there, done that? Maybe one who's still doing it? New Hampshire Family Voices is run by parents with children who have multiple disabilities or mental health conditions. NHFV has a free lending library of books, videos, audio tapes and a quarterly newsletter.
- Granite State Independent Living: GSIL is a private, non-profit orginization committed to equality of opportunity for all people with disabilities. Ever since 1980, GSIL has grown into a statewide information, advocacy and direct services organization run by and for people with disabilities. Learn more about the GSIL program Teens Coping.
- Spina Bifida Association of America: The SBAA aims to prevent spina bifida and to enhance the lives of all affected. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.
- Arizona Spina Bifida Association: This site includes a glossary of spina bifida-related terms to help decipher what your medical team is saying. One mother of a SB child told us she spent over three hours browsing through this site.
- SPINAbilities: A Young Person's Guide to Spina Bifida. Ed. by Marlene Lutkenhoff, RN, MSN, & Sonya Oppenheimer, MD
- Children with Spina Bifida: A Resource Page for Parents: Includes loads of information all the way from learning issues to great tips for new parents.