The following support groups are for teens with spina bifida and their families:
- Parent to Parent of New Hampshire is statewide organizations helping families with children with special needs find support from other parents, healthcare professionals, and the communities in which they live.
- The Spina Bifida Awareness & Support Group provides support for families in and around New Hampshire. The primary goal of the group is to work with families who are expecting a baby to be born with spina bifida. The group provides a relaxed atmosphere where families can share experiences, support, and advice. Regularly scheduled meetings are held in Concord, NH. For more information, please contact Michelle Drago at (603) 783-4685 or by email at email@example.com.
- The STAR (Steps Toward Adult Responsibility) Program at DHMC assists teens with chronic physical health conditions. It is a group mentoring program that brings teens together with Dartmouth College students who also have chronic health concerns for regular meetings and activities.
- The Teens Coping Program is a great peer support network run under Granite State Independent Living (GSIL), based out of Concord, NH. Meetings are held quarterly on Saturdays to talk about subjects such as disability awareness, adapted driving, going to college, community involvement and much more! If interested, feel free to contact Jeff Dickinson, facilitator of the Teens Coping Program. You can email him at firstname.lastname@example.org or call him directly at (800) 826-3700.
- Vermont Family Network is a statewide organization that helps families with children with special needs find support from other parents, health care professionals, and the communities in which they live.